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Health Impact Assessment and Surveillance

Foundry workers (Ref: 12/NW/0048) and Silica Workers (Ref: 12/NW/0049)

Information about how we use survey participant' data in research

This information is provided to participants of either of the research studies above and lays out important information about how we use personal data that we have collected from you as part of the research work.

What will the research team do with the information I give to them?

Health information is regarded as a special category of information. We will use the information for health research only, and not for any other purpose.

HSE is the sponsor for this study based in Great Britain and will be using information from you in order to undertake this study. HSE will act as the data controller which means that HSE is responsible for looking after your information and using it properly. HSE will keep identifiable information about you for 15 years after the study has finished.

Your rights to access, change or move your information are limited, as we need to manage your information in specific ways in order for the research to be reliable and accurate. If you withdraw from the study, we will keep the information about you that we have already obtained. To safeguard your rights, we will use the minimum personally-identifiable information possible.

You can find out more about how we use your information in HSE's Privacy Policy Statement.

Will my information be kept confidential?

We will treat any information you provide or any health information sent to the study team as strictly confidential. Access to personal data will be restricted to authorised people, which are the small number of individuals working on the study and may include auditors who check that the study is being carried out correctly. Your personal data will be protected by the Data Protection Act 2018 and the General Data Protection Regulation (GDPR).

HSE may seek the help of other expert researchers with our research. Also, other expert researchers may ask us for permission to use the information we have collected during the study. This may include researchers, who work on similar studies in other countries. It is important to stress that all information collected about you during the course of the research will be kept strictly confidential. Any information about you, which is used by other researchers, will have your name, address and any other information that may identify you removed so that you cannot be recognised. We will not pass any information that can be linked to you as an individual to anyone, unless you have given us your permission to do so.

We must publish the findings of our research if they are to help improve health and safety. But personal information that could be linked to you as an individual will not be made public. We will only report research findings that are summarised over many individuals.

What if I have a complaint?

If a participant wishes to raise a complaint on how we have handled their personal data, they can contact our Data Protection Officer who will investigate the matter. If they are not satisfied with our response or believe we are processing their personal data in a way that is not lawful they can complain to the Information Commissioner's Office (ICO).

They can contact our Data Protection Officer by email at DPO@hse.gov.uk, or they can write to us at the following address:

Data Protection Officer,

Health and Safety Executive,

1.3 Redgrave Court,

Merton Road,

Bootle,

Liverpool L20 7HS.

More information on how HSE processes data is provided in HSE's Privacy Policy Statement.

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